The right tools make caregiving more manageable – even in the hard moments

Caregivers need information fast, on the go, during crises – not buried in binders. Here are trusted apps and digital tools designed to fit your real life.

KEY RESOURCES:

• Sickle Cell 360 App

  Patient-centered app for tracking pain episodes, medications, hydration, and appointments. Developed with SCD community input.

• MyChart / Patient Portals

  Access lab results, message care teams, and manage appointments. Ask your hospital which portal they use.

• Medisafe – Medication Tracker

  Medication reminders, refill alerts, and a drug interaction checker. Free basic version available.

• CaringBridge

  Create a private site to update family and friends during hospitalizations – so you don’t have to repeat the same news dozens of times.

• Google Drive / Shared Folder

  Keep medical records, insurance cards, medication lists, and school plans in a shared folder accessible from any device.

BUILD YOUR ‘GO-BAG’ DIGITALLY

Keep a digital folder with your child’s medication list, allergy information, insurance card photos, and emergency contacts. Share it with one trusted family member so someone always has access.